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Location: Nova Scotia, Canada

In Sept./05 I was diagnosed with Primary Mediastinal Large Diffuse B Cell Non Hodgkins Lymphoma. The tumour in my chest measured 10cm x 10.6cm x5cm. After I completed 6 rounds of CHOP-R chemotherapy, a CT Scan in Jan.06 showed that my tumour had decreased by well over half the original size. A Gallium Scan showed negative for cancer cells in my mass. We decided to do 2 more treatments to be sure we killed any remaining cancer. We now had to decide if I should proceed with radiation. Did the risks of radiation outweigh the benefits? My hematologist and radiation oncologist had excellent arguments for both sides of the coin. The decision was to be mine. They set up appointments for me to see doctors in Toronto and Vancouver for 2nd opinions. In Vancouver I had a PET/CT Scan (a superior machine to a Gallium Scan) to see if my tumour was active. On March 17th this scan revealed that my tumour WAS still active and had INCREASED in size from an early scan. This meant that I had Relapsed or Refractory NHL....my best chance for cure was a Stem Cell Transplant. In my blog, I will describe what I am going through before, during and after my transplant.

Tuesday, August 01, 2006

Day + 14

WBC 1.5, HGB 105, PLT 61, ANC 255 (Auto Count)

Quote of the Day:
WHAT'S THE BIG HURRY? YOU'RE NOT EVER GOING TO GET IT DONE, SO WHAT ARE YOU RACING TOWARD? EVERY SINGLE ACTIVITY THAT YOU'RE INVOLVED IN IS FOR ONE PURPOSE ONLY, AND THAT IS TO GIVE YOU A MOMENT OF JOY. LIGHTEN UP. LAUGH MORE. APPRECIATE MORE. ALL IS WELL.
- Abraham-Hicks

It is great to be out of the hospital! Dad barbecued some chicken breasts last night (I enjoyed the smell of the barbecue).....Mom baked some sweet potatoe & steamed some green beans for supper last night & I did a great job eating everything on my plate. I even managed a small piece of wild blueberry pie & ice cream.......the blueberry's came from our property.....compliments of Sue M. doing the picking.....mmmm mmmm good!
Slept like a baby last night without all the hospital interuptions. Dr. Couban was definitely correct in sending me home for a faster recovery!!!

This morning Dad drove me to the hospital Medical Day unit on the 4th floor of the Victoria Building for my 7:30 am. appointment. Allison is my primary nurse this week & she took my blood and then hooked me up by I.V. for 2 hours to receive Bolus ( Saline & Liquid ). I received my blood counts back around 10am. & was on my way home by 10:15am. I was lucky today, because my nurse told me it can take up to 4 hours to get the counts back!!

The rest of my day went very well.....Dad & I dropped by my house to pick up some clothes.....& while we were there, we decided to water our new garden & my "Mount Everest" tree.......it felt great to be at home....outside.....enjoying the sunshine & nature!!
After lunch I needed a nap.....it is recommended that I take a few short naps or rests during the day, rather than long ones......& only enough that I can still sleep through the night. Andrea, Sue M. & Denise stopped by for a visit after my nap....which I enjoyed!

Tomorrow, I am going to start excercising to get my strength back.....as per instructions from my medical literature. It is recommended that I start doing some cardio to strengthen my heart.......weights & stretching for the muscles. For me this is not a hardship, as I love to exercise......this stuff is right up my alley!!!

Tomorrow, is also the day I get to go to my own home.......in my own bed!!......though, I have been very comfortable at Mom & Dad's.....they take great care of me! Mom will stay with me during the week days to help with my meals & appointments. Sarah asked me about the dogs....it is OK for me to be around my dogs but not to sleep with them in the same room....if I pet them, then I must wash my hands....& they are not to kiss my face. As I am writing this, the dogs are running around in my parents back yard waiting to see me for the first time since being in hospital......I am very excited!!! .....I must go now!

My appointment for tomorrow is 8:30am. for bloodwork & Bolus!




8 Comments:

Anonymous Anonymous said...

Glad to hear you are home. We all know the kind of care you will get from your mum. Nothing like the soothing comfort of a mother. Keep smiling Angie..........and work those weights.
Mary

6:35 pm  
Anonymous Anonymous said...

Congratulations Angie on getting to go home! What a wonderful surprise that must have been. I wondered what would happen with the dogs (although some dogs are cleaner than some humans). Make sure and follow all the rules, which I'm sure you will, so that you get to stay there.
I'm sure it's your amazing positive attitute that got you so far so fast. Keep it up.
Brenda & Gerry

7:11 pm  
Anonymous Anonymous said...

Hi Angie: This is Sheila, Sue M's sister (yes, the twin). Congrats on your remarkable progress. I look forward to your daily updates and like everyone else, am so amazed by your strength and determination to beat this. You're definitely an inspiration to everyone. Way to go.

7:59 pm  
Blogger Unknown said...

Angie, this was the most excellent post of all! You sound just WONDERFUL, and every single thing you said seemed to reflect a more relaxed, happy, and vibrant Angie than the one who's been fighting the battle of her life within the confines of four sterile walls, enduring a parade of medical professionals all day and night.

I got so excited for you when you got excited about your dogs being outside! I so know that feeling! Thank you for answering my question. I'm getting more cautionary glances and "Do you have any family nearby that could keep them?" Um...all EIGHT? Yep, probably not. So we shall see what we shall see.

Anyway, things are good here. I'm waiting for tonight's 27 hour hook-up and the normal parade of concerned nurses, checking vitals and all the rest of it. Speaking of which, your peaceful night's sleep sounded EXACTLY like what the doctor ordered! Oh, wait...he DID order it, didn't he? Smart man.

So happy to hear you happy. Enjoy the outside and being back in your own home. :) And thank you for putting your reading throng out of our misery with an update. I was jonesing pretty bad. Ha ha.

8:33 pm  
Anonymous Anonymous said...

Home Sweet home!!!!
Isn't that great...we are so happy for you Angie.We are thrilled you will be home where we can keep an eye on you :)
We will continue to pray for you and support you in any way we can...we are just a phone call or shouting distance away.
Welcome home neighbour!!!
Love Sue and Andrea

9:44 pm  
Anonymous Anonymous said...

Hi Angie; How awesome that you are home & doing so great! Your parents, Sue & family must all be absolutely thrilled. Jeff & I think of you all the time & hear updates from Dave & Sandy. Can't wait for you to meet baby Rachel sometime soon.
xo's
Krista, Jeff & Rachel

11:09 pm  
Anonymous Anonymous said...

WAY TO GO ANGIE

Congrats on going home.

Simply Amazing, if anyone could have done it early it would be you!

Many Healing and Healthy thoughts tangled with love from...

Jane, Michelle, Holly & Timothy

9:21 am  
Anonymous Anonymous said...

Hi Angie

Congratulations on being able to go home earllier than expected! I do agree that you will recover better in your own surroundings.

I'm glad to see your counts are up and that everything is very positive.

Keep up the great work girl!

Coleen

11:57 am  

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