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Location: Nova Scotia, Canada

In Sept./05 I was diagnosed with Primary Mediastinal Large Diffuse B Cell Non Hodgkins Lymphoma. The tumour in my chest measured 10cm x 10.6cm x5cm. After I completed 6 rounds of CHOP-R chemotherapy, a CT Scan in Jan.06 showed that my tumour had decreased by well over half the original size. A Gallium Scan showed negative for cancer cells in my mass. We decided to do 2 more treatments to be sure we killed any remaining cancer. We now had to decide if I should proceed with radiation. Did the risks of radiation outweigh the benefits? My hematologist and radiation oncologist had excellent arguments for both sides of the coin. The decision was to be mine. They set up appointments for me to see doctors in Toronto and Vancouver for 2nd opinions. In Vancouver I had a PET/CT Scan (a superior machine to a Gallium Scan) to see if my tumour was active. On March 17th this scan revealed that my tumour WAS still active and had INCREASED in size from an early scan. This meant that I had Relapsed or Refractory NHL....my best chance for cure was a Stem Cell Transplant. In my blog, I will describe what I am going through before, during and after my transplant.

Friday, December 01, 2006

Day + 136 Recovery is going well!

I know it has been weeks since I updated my blog, and I don't have a good reason......other than maybe I just wanted to stop thinking or talking or writing about hospitals & treatments & being sick for awhile.....just for a break!.......
However, it has been brought to my attention on several occasions by certain people ....that they get worried when they don't hear from me.......they have told me that they were in such a habit of checking my blog everyday, that they are disappointment when I don't write more often......SO HERE GOES!!

There really isn't much to report, other than I have not had any appointments since my last posting & I currently have not heard about any upcoming appointments.

My recovery has been a slow steady upward journey......sometimes I take a step back & then forward again. I have learned to manage my energy each day......usually I accomplish more earlier in the day & save the easier tasks for the evenings.....ie. like watchin TV :)!!
The past couple weeks, I have noticed a much greater improvement in the way I feel.....my fatigue is less & I just know I am getting stronger.

I am continuing my supplemental program which involves.....a Multivitamin, IP6, Astragalus, Pro Biotics(acidophilus) , Ambratose (glyconutrient), Phytaloe (dried fruits & veggies), Flax......& sometimes my UDO's Oil. I also inject myself with Iscador every couple days....it is basically a mistletoe root that helps kill & stop tumour growth.....this natural type treatment is used in conjunction with conventional cancer treatments in 70% of cancer patients in Germany.

I have also been going for Vitamin C IV treatments at my Naturopath's office.....it is approximately 2 hour process & I try to go twice a week.
Vitamin C is a known antioxidant and has been associated with reduced risk of stomach, lung, colon, oral, and prostate cancer.
Immune system booster. Vitamin C increases white blood cell production and is important to immune system balance. Studies have related low vitamin C levels to increased risk for infection.

Everybody gets cancer.Some of us die from it.Why?
Normal, healthy cells are arranged in a definite, organized structure to form tissues. They only divide to make a new cell when the need arises. Sometimes, a cell will mutate and disobey the rules. This is most often caused by free-radical damage to the cell, which is why we hear so much these days about antioxidants such as Vitamins A, C and E and Beta Carotene. These Vitamins neutralize the free radicals and slow their progress. This mutation of individual cells probably happens to all of us every day. As quoted in An Alternative Medicine Definitive Guide to Cancer, Dr. Douglas Brodie says
"Each one of us produces several hundred thousand cancer cells every day of our lives. Whether we develop clinical cancer or not depends upon the ability of our immune systems to destroy these cancer cells. That's because cancer thrives in the presence of a deficient immune system."
Why Cancer Progresses?
When a mutated cell has the ability to replicate itself with disregard to the tissue structure - This is a tumor. Our bodies have two basic lines of defense against tumor growth - both involving Vitamin C.
The first is our immune system. Even after the most successful surgery, radiation- or chemotherapy, some cancer cells are bound to remain. It is our immune system that will hunt down these cells and destroy them. Vitamin C is required for our immune systems to generate and mobilize the specialized cells that fight cancer and infections, too. The more stress your immune system is under, the more Vitamin C is used, if it is available. If it isn't available, the disease will not be stopped.
Secondly, there is a cement, or ground substance, that holds our cells together properly to form the integrity of our tissues. Dr. Ewan Cameron theorized that cancer cells excrete a substance, hyaluronidase, that breaks down the collagen and fibers that make up the structure of this ground substance which creates the space needed for tumor growth. Vitamin C is required for the development of collagen and this fibrous material. This is why it is so important to all tissue related problems, including disc injuries, gum problems, vascular diseases and even skeletal problems. It is a reasonable leap of logic that chronic Vitamin C deficiency is a major contributor to osteoporosis. Juvenile osteoporosis could probably be eliminated or at least minimized through proper nutrition.


In addition to my Vitamin C treatments, I have been using an Infrared Sauna at my Naturopaths office......my energy skyrockets after my session...& my skin feels so smooth & my spirits are lifted & I just feel GREAT! There are so many benefits for FAR Infrared Saunas, that I think everyone could benefit for using one regularly. Do your own search on the internet, if you are interested to learn more.....however, some of the benefits are:

Relaxation & Stress Relief
Pain Relief
Weight Loss - Burn 300-600 calories per session!
Improves skin, reduces scarring & cellulite
Passive cardiovascular training
Boost energy, immune system & metabolism
Detoxification
Decreases lactic acid (good for over trained muscles)
Perfect warm-up before sports and workout
Speeds healing and recovery from injuries, sprains and cuts
Helps stop swelling
Improves lymphatic flow and blood circulation


This is an excerpt from CTV news last year:
http://www.prohealthsauna.com/u-ctvnews.html

Only read this if you are interested, as I do not intend to bore......
We live in a world where we are overpowered by toxins and pollutants. Almost everything we eat, drink, or breathe has toxins and pollutants in it. As a result our bodies are constantly trying to detoxify us but because the input is so great, we simply cannot keep up. Therefore, we store a lot of toxins until we can dispose of them.Someone once compared it to working in a factory where our job was to shred paper. As the constant stream of boxes came down the conveyor belt, our job was to open them up and shred the contents. This all worked fine until the conveyor belt started to speed up. As a result we got further and further behind until we had no choice but to stack some boxes in the corner until we could deal with them. Still the boxes kept coming and pretty soon we had no more room to put them. All we could do at that point was to shut down the conveyor belt until we could catch up.This is what happens in our bodies. If we take in more toxins than our body can dispose of, we store these toxins until we can get rid of them. But, if the toxins keep coming in faster than we can process them, our body eventually gets overpowered, shuts down, and we get sick. I believe fibromyalgia is caused by this type of toxic overload as are many other sicknesses and diseases.Therefore, to stay healthy, we need to decrease our intake of toxins and process the toxins we do take in better. If we help our body get rid of toxins, then our liver, kidneys, and other organs have more time to dispose of the daily intake and we store less and less. In an infrared sauna, the infrared rays penetrate up to 2" into our bodies, increasing blood circulation and cellular activity. By simulating a fever the immune system springs into action. Our heart rate increases and as we start to sweat, toxins are released from our cells and carried out of our body through the skin. This gives the heart and circulatory system an aerobic exercise as well. As muscles and joints are loosened up, we absorb more oxygen. This makes us feel refreshed and energized as aches and pains disappear. It has been said that to have a 30 minute sauna once a day for a year will get rid of most of our accumulated toxins and pollutants and help our liver and kidneys keep up with the rest of the detoxification process.Almost everyone I have spoken to who uses an infrared sauna regularly tells me the same story. More energy, greatly reduced pain, better looking skin, more flexible, loose muscles and a general feeling of health and vigor. I have experienced the same. The inflow of toxins is not going to stop unless we make some drastic changes to the world we live in. This is highly unlikely to happen in the near future. Therefore, the best we can do is to help our body detoxify so we can be healthier, live longer, and most importantly, enjoy a good quality of life.

"They spend all their health making money, and then spend all their money trying to restore their health." Anonymous

This is just one site of many that has a ton of info. on the subject: http://www.physiotherm.net/saunas/43/infraredSaunaResearch.html

ENOUGH ON THAT......

Other than my naturopathic self imposed regime, I am busy trying to get my life back to a normal....Xmas shopping, decorating, visiting with friends, being able to eat at restaurants again, walking etc.
Everything is currently going along well & all of our family are looking forward to a wonderful Christmas & postive & healthy coming year.

I probably won't be posting everyday, however, I will try to update more often then my last posting.

5 Comments:

Anonymous Anonymous said...

The infared sauna sounds really intriging, so glad to hear you're trying to get on with regular living.You certainly earned a break from the blog writing and all the thinking that goes into it. Continue to take care.
Love, D & L

6:11 pm  
Anonymous Anonymous said...

Hi Angie,

Glad to hear that your recovery is going well. We think about you often and wish you the best. Take care.

Love,
Frank

9:15 pm  
Anonymous Anonymous said...

So glad to have you back on your blog. Ever since we came back from NS last spring and I told my mom about you, she has been checking on you regularly and like a lot of others, she was starting to get a little worried. So now we're happy you took that time off to take a break from reporting.
Really enjoyed the comparison to the conveyor belt - really puts it in perspective.
You sound like you are further ahead in your Christmas preparations than I am - my only excuse is procrastination.
Merry Christmas to you and Sue and all the best in 2007.
Brenda & Gerry

3:45 pm  
Anonymous Anonymous said...

Hi Angie,

Glad to hear that your recovery is going well, we think about you often.

Take Care of Yourself!
Fawn and Jamie McFarland

2:40 pm  
Anonymous Anonymous said...

Hi Angie:

Such good news that your recovery is going well. You will truly enjoy this christmas with family and friends.
How is your friend Sarah doing? She hasn't posted since Nov. 7, I think about her and hope that she is doing well.

Cousin, Mary

5:46 pm  

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