Angie's Stem Cell Transplant 2006

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Location: Nova Scotia, Canada

In Sept./05 I was diagnosed with Primary Mediastinal Large Diffuse B Cell Non Hodgkins Lymphoma. The tumour in my chest measured 10cm x 10.6cm x5cm. After I completed 6 rounds of CHOP-R chemotherapy, a CT Scan in Jan.06 showed that my tumour had decreased by well over half the original size. A Gallium Scan showed negative for cancer cells in my mass. We decided to do 2 more treatments to be sure we killed any remaining cancer. We now had to decide if I should proceed with radiation. Did the risks of radiation outweigh the benefits? My hematologist and radiation oncologist had excellent arguments for both sides of the coin. The decision was to be mine. They set up appointments for me to see doctors in Toronto and Vancouver for 2nd opinions. In Vancouver I had a PET/CT Scan (a superior machine to a Gallium Scan) to see if my tumour was active. On March 17th this scan revealed that my tumour WAS still active and had INCREASED in size from an early scan. This meant that I had Relapsed or Refractory NHL....my best chance for cure was a Stem Cell Transplant. In my blog, I will describe what I am going through before, during and after my transplant.

Tuesday, January 23, 2007

DAY + 189 GREAT NEWS TO SHARE!!!

TIME TO UPDATE MY BLOG.......

I have been keeping things low key for the past month or so, as I was waiting for an appointment for my 3rd Pet Scan.....

Originally, my scan was supposed to be in December 2006, prior to Christmas......however,

Dr. Wilke ( my radiation oncologist ) had been trying for over a month to get me into the PET facility in Saint John, New Brunswick, as they recently opened, and it would be a lot closer.(approx. 3 1/2-4 hour drive from Halifax)

As it turned out, he was probably the first MD to try to do this, and the head of MSI here had been talking to people in New Brunswick, and had finally got back to Dr. Wilke on Nov. 30th.

Essentially, New Brunswick wanted to charge Nova Scotia nearly 5 times the fee for a PET SCAN than Quebec charges ($5500 versus $1181) for service to Nova Scotia patients, so the Head of MSI told the people in New Brunswick that there will be no deal, therefore Nova Scotia patients will not be funded to go to New Brunswick.

Dr. Wilke also said that I shouldn't pay privately in NB either, as they have had some screw - ups already, as they fly in the radiative stuff from Sherbrooke, per dose, and have had flights cancelled, tests needed to be rebooked, etc, and they are inexperienced.

So, in his hope to get me scanned closer to home......it essentially introduced a delay, of which he was sorry, as he wanted to get me scanned before Christmas.

Therefore.....this meant he had to go back to the drawing board & request another scan at the University of Sherbrooke Hospital in Quebec.....

I was actually OK with delaying my scan until January.......after the hecticness of the Christmas Holidays.

Anyway, Sue & I flew to Montreal on January 10th. Our friend, Lucien drove us to Sherbrooke on Thursday January 11th for the scan. Everything went really smooth during this trip....and after the scan was over....we had a great time going out to eat, shopping, visiting with friends etc.

The test results have been on my mind for the past week & a half........some people call it "scanxiety".......I tried to keep my nerves under control as best as I could......keeping busy helps!!

Anyway, after eating supper tonight....I sat down at my lap top to check my e-mails just after 7pm.......& there was the most beautiful site......an e-mail from wonderful Dr. Wilke saying "GOOD NEWS" in the subject!!!

WELL.........this is the news I so badly wanted to hear!!!!!

The PET scan showed complete regression of the area of abnormal activity. It is no longer metabolically active.

There is no abnormal activity anywhere else. It showed a little inflammation in the lung from the radiation.

I am in remission. Remission doesn't guarantee a cure, but it's a good start.

TIME TO CELEBRATE!!